Exploring Mothers' Perspectives Of Family Caregiving Dynamics In Adolescent Atopic Dermatitis: A Qualitative Study From Spain

J Pediatr Nurs. 2026 Nov 11;92:757-766. doi: 10.1016/j.pedn.2026.10.052. Online ahead of print.

ABSTRACT

PURPOSE: The aim of this study was to explore mothers' experiences of caring for adolescents with atopic dermatitis, focusing on caregiving dynamics within the family and their implications for mother-father-adolescent relationships.

DESIGN AND METHODS: A qualitative descriptive study was carried out. Mothers of adolescents aged 12-17 years with atopic dermatitis were recruited using purposive sampling from dermatology departments in two public hospitals in north-western Spain. Semi-structured interviews were audio-recorded and transcribed verbatim. A thematic analysis was conducted.

RESULTS: Fifteen mothers participated. Two themes were identified: (1) Negotiating care and autonomy in mother-adolescent relationships in the context of atopic dermatitis, and (2) Asymmetrical parental caregiving in adolescents with atopic dermatitis and its implications for mother-father relationships. Mothers described caregiving as an evolving responsibility, with adolescents gradually assuming self-care while mothers managed practical, cognitive and emotional aspects of treatment. Caregiving was negotiated within mother-adolescent relationships, with closeness and tension around autonomy, adherence and flare-up management. Fathers' limited involvement was perceived as contributing to asymmetrical caregiving, maternal burden, and changes in couple relationships and family functioning.

CONCLUSION: Mothers described caregiving as a relational and negotiated process within family life, characterised by gendered expectations and asymmetrical responsibilities associated with maternal burden, emotional strain, and changes in couple relationships, sibling experiences and family organisation.

PRACTICE IMPLICATIONS: Nursing care should adopt a family-centred approach that recognises asymmetrical caregiving roles, addresses maternal burden and promotes father and family involvement. Supporting communication and adolescents' progressive self-care may improve family functioning and well-being.

PMID:43014039 | DOI:10.1016/j.pedn.2026.10.052