I'm Almost 20, Have An Illeostomy And Maine Ssi Is Fighting Me To Keep My Disability Income.

I need advice, idk if this is the right subreddit. If not direct me elsewhere.

Location: Maine

I have had my illeostomy since I was 2 years old. I am almost 20 now, at the beginning of the year around February ish, I got a letter in the mail saying I no longer am eligible for adult SSI. I cannot work. I have had two jobs and they both didn't last long. I left my first ever job after four days because long story short I wasn't having accomodations met. The second one I worked with 90% family. I worked with both sister and brother in law and my manager knew my father. Whenever I had to leave due to nausea or anything else my sister and brother in law were there to explain to my manager if he was confused. I lasted about a month before leaving because (again long story short) one of the higher ups from discriminating and lessening my already short hours (went from 3 days a week to 1 day very fast). I have to find a job that can be accommodating and understanding that I usually have multiple appointments if not a week then a month. My schedule is packed and I'm constantly drained because of it. I have a illeostomy nurse I see for the sores (that I've had for years but my parents let go untreated) around my ostomy. I also get extreme pain from my rectum and often mucus that my doctor has honestly kind of dismissed the severity of. (I'm getting a new doctor soon hopefully). I keep getting told that my ostomy isn't a valid reason to be on disability. But it is literally a disability. It disables me. It impacts my every day. But I had one hearing for SSI. Got a denial. I appealed it. I'm waiting for a date for the second hearing now. I have called I shit you not about 15 lawyers in my state if not more. I have called every place that's been recommended and then some. I'm starting to overthink and question myself.

Is there any chance I will win my SSI back? Should I just suck it up and find a job on the weekends and accept the fact I will never make enough to move out and live on my own? Should I accept the fact I will work a job where very likely accommodations will not be met even if they "have to accommodate me". Or should I keep fighting my SSI case? I feel exhausted. And super invalid. I'm questioning everything. Wondering if maybe I'm subconsciously making everything more dramatic. And I should just suck it up and be a normal human being even if I'm in pain most of the time.

Tldr; I have an illeostomy and don't know if I have a case for Maine disability income.